Powering Advocacy translates community insight into action by aligning storytelling, research, advocacy, and civic participation. This work strengthens accountability and builds pathways for long-term systems change across healthcare and public institutions.
Advancing Equity Through Policy, Data, and Civic Engagement
NATIONAL EFFORT FOR SYSTEMIC CHANGE
Powering Advocacy builds momentum by turning lived experience into tools, data, advocacy efforts, and civic engagement. This work supports representation, participation, and influence across systems that shape health outcomes.
It does this in three key ways:
How Powering Advocacy Creates Lasting Impact
This work includes advocacy toolkits, education resources, and data-driven products that help identify barriers to care and systems change opportunities.
Developing Tools and Data for Action
Powering Advocacy supports partnerships, legislative engagement, and civic participation, that elevate community voice and strengthen democratic access.
Advancing Policy, Legislative, and Civic Engagement
Powering Advocacy centers patient and community voices through storytelling and shared insight that inform advocacy efforts, research priorities, and policy conversations.
Amplifying Lived Experience and Community Storytelling
Turning Experience Into Evidence
Project EVE is a research-driven program exploring autoimmune disease and women’s health across perimenopause and menopause. Participation helps uncover patterns, improve representation, and inform better care through real-world data.
Project EVE
Research Study
As an official NOWINCLUDED partner, The AIP BIPOC Network connects communities to opportunities to share their experiences through surveys and engagement initiatives that inform research, insights, and future opportunities.
NOWINCLUDED
Research Community
Powering Advocacy Through Research
Powering Advocacy connects lived experience to the data and research that shape care, policy, and funding.
By participating in research, sharing your experience, and engaging in community-driven initiatives, you help ensure autoimmune disease and chronic illness are better understood across communities. Your input strengthens representation, improves data, and informs decisions that impact more than individual care.
Explore opportunities to take part in studies, paid research, and engagement initiatives that turn community voice into evidence for action..
Join a patient-powered research community connecting people with autoimmune disease and chronic illness to paid research opportunities. Your experiences help shape healthcare, research, and solutions designed with patients in mind.
Real Patient
(formerly Savvy Cooperative)
Civic engagement and voter registration efforts supported to expand community participation.
Advocacy tools and resources developed or refreshed to support education, documentation, and systems engagement.
Program Impact Statistics
Powering Advocacy
Powering Advocacy focuses on building capacity, representation, and systems engagement for communities impacted by autoimmune and chronic illness.
Advocacy and legislative engagements supported at the state and national level, including systems navigation partnerships.
Community stories collected and elevated to inform advocacy, research, and systems decision-making.
These posts highlight policy issues, research developments, and systemic factors shaping autoimmune and chronic illness care. Selected posts are featured here to provide additional context and insight related to the work of the Powering Advocacy program.
The Latest Advocacy Insights, Policy Perspectives & Analysis
Powering Advocacy connects lived experience to policy, research, and civic engagement to advance access, inclusion, and prevention. Contributions support advocacy partnerships, education tools, legislative engagement, and civic participation.
Support the Conversation for Change
DONATIONS ARE 100% SECURE & TAX DEDUCTIBLE
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Powering Advocacy centers lived experience in efforts to improve healthcare systems and policies affecting people with autoimmune disease and chronic illness. The program connects patient stories, community data, and civic participation to advocacy, research, and policy conversations.
By bringing the perspectives of people most impacted into spaces where decisions are made, Powering Advocacy helps surface gaps in care, highlight barriers to access, and support solutions that reflect real community needs.
What makes Powering Advocacy unique among advocacy programs?
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Advocacy efforts include:
- legislative and policy engagement
- coalition advocacy with partner organizations
- systems navigation partnerships
- research collaboration
- nonpartisan civic participation
These efforts help ensure community voices and lived experience inform healthcare policy, research priorities, and systems-level change.
What kinds of advocacy does Powering Advocacy focus on?
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Yes. Powering Advocacy engages with policymakers, institutions, and advocacy organizations at the state and national level. The program contributes community insight, lived experience, and advocacy perspectives to conversations about healthcare policy, research priorities, and systems-level change.
Through partnerships and collaborative advocacy efforts, Powering Advocacy helps ensure that the experiences of people living with autoimmune disease and chronic illness are represented in discussions that shape health policy and care systems.
Does Powering Advocacy engage with policymakers and health institutions?
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Patient stories are collected and elevated to ensure lived experience informs advocacy efforts, research priorities, and systems decision-making. These stories help surface gaps in care, highlight barriers to access, and bring real community perspectives into conversations that shape healthcare policy, research, and support services.
How does Powering Advocacy use patient stories to drive advocacy and change?
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Powering Advocacy uses technology and data tools to translate lived experience and community insight into actionable resources that support advocacy and decision-making.
This includes tools such as advocacy toolkits and the Autoimmune CivicScore GPT, which help transform community experiences, research insights, and policy information into accessible resources that individuals, advocates, and organizations can use to engage systems, inform policy discussions, and advance health equity.
How does Powering Advocacy use technology and data to support advocacy?
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No. Powering Advocacy supports nonpartisan civic engagement, which includes voter registration education, civic participation resources, and policy awareness. The program focuses on helping communities understand how public policy and civic engagement influence health access, healthcare systems, and research equity.
By encouraging informed participation in civic processes, Powering Advocacy helps strengthen community voices in decisions that affect healthcare access, public health programs, and health equity.
Does Powering Advocacy include voter registration activities?
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Anything else you’d like to learn more about? Get in touch with our team and we’d be happy to answer your questions.
Frequently Asked Questions
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